I received a letter this morning containing the appointment date for my Lumbar Puncture. Which basically means they will stick a needle into my spinal cord and draw some fluid from it to help relieve the pressure in my head. I have been waiting since April for this and I honestly thought I would have to wait longer than I have. My head hurts. I don’t know if the LP will actually show anything, or if it will relieve any of the pain. I can just live in hope.
So basically, I am hoping my Mam will be able to take me as the appointment is 26.8 miles from my home, so about a half hour drive. It’s not one I can walk to.
I am shitting bricks. Seriously. The last time I had a Lumbar Puncture, I was told the usual. “Go to the toilet, completely empty your bladder.” I did that, they put the spinal block in, did the LP and after they left, I could feel that I needed to pee again. I have a nervous bladder. Really twitchy. I can empty it completely and need to go again in 10 minutes. So I called the nurses, they told me off for not emptying my bladder properly and walked away. I pissed myself. I had to lie in a bed of my piss feeling it get cold against my skin, until I called the nurse back and told her I’d had an accident.
“For god’s sake, didn’t you go before they did this. We did tell you.” I told them I had a twitchy bladder.
“No one is that bad, you can’t have emptied your bladder properly!” I basically got told off for something I had no control over. I was actually staying in hospital at the time, they were investigating stroke like symptoms, which I now know were Migraines with Aura. A Sporadic Hemiplegic Migraine which basically presents as a stroke. It terrified the living shit out of me and was diagnosed after my LP came back clear, along with CT’s and an MRI. I was discharged with the inability to speak properly, a loss of feeling on my left side and was told, it’s a migraine. Deal with it.
I was fucking terrified.
This LP that I have coming up will be different though, apparently. It will be done with a local anaesthetic and I will be able to get up and walk around after it. So we will see. That’s if my Mam can take me. If she can’t then I will have to rebook it for another day. I will just have to wait and see what Mam is doing that day.
So that’s what is happening with me at the moment! YAY